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Rare diseases (general)

Showing 5 support listings:

Rare Disease UK

Information about rare diseases

Rare Disease UK is the national campaign for people with rare diseases and all who support them. They provide information and a voice for the rare disease community.


Genetic Alliance UK

Information about genetic conditions

Approximately 6,000 children are born in the UK each year with a syndrome without a name or diagnosis. Supports people affected by these undiagnosed conditions.



Rare diseases community

A community that aims to transform rare diseases into known diseases by advancing research and sharing knowledge.


FND Action

Functional neurological disorder support

Provides information, support and online groups for people with functional neurological disorder (FND).


PSC Support

Information about Primary Sclerosing Cholangitis (PSC)

There is information about Primary Sclerosing Cholangitis, tips on how to live your life with the condition and a free support app.