Muscular dystrophy

Showing 7 of 7 support listings


Disabled mum youtuber

Lizzy is a busy mum and lives with a form of Muscular Dystrophy called CMT (aka Charcot-Marie-Tooth Disease). Find vlogs about everyday life and disability-related topics.

Duchenne UK

Resources for Duchenne Muscular Dystrophy (DMD) parents

Free resources including information about how you can look after your child, your family and yourself after diagnosis.

The Muscle Help Foundation

Activities for children with Muscular Dystrophy

Family charity delivering transformational experiences in the UK called ‘Muscle Dreams’ for children and young people with Muscular Dystrophy (MD) and allied neuromuscular conditions.

Action Duchenne

Duchenne and Becker Muscular Dystrophy support

Wide range of support for anyone affected by Duchenne and Becker muscular dystrophy, whether that’s you or someone you know or care for.

Myotonic Dystrophy Support Group

Myotonic dystrophy support group helpline

Support group for those with and effected by Myotonic Dystrophy. Offers contact and connection services and practical advice.

Muscular Dystrophy UK

Muscular Dystrophy support for an independent life

Provides guidance on NHS services and offers a range of resources to help people live as independently as possible.

Duchenne Family Support Group (DFSG)

Help for families with children with Duchenne Muscular Dystrophy (DMD)

The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents their families and professionals.

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